Stuff

It's wild the amount of stuff kids with physical disabilities need. Makayla currently uses a wheelchair at school, and an  enclosed walker (finally). At home we have a wheelchair stroller, and 2 walkers which were awesomely given to Mak by little friends of hers who are now running around (a little shout out to JP and Aurora)! We keep one in the basement for practicing but it seems to be a bit heavy yet for her to really enjoy using, and one that we keep by the door for outside and going places. I have just realized that the only way I can take both wheelchair and walker is if Daddy rides on the roof. (Not super practical) Not only is there a lot of stuff that takes up a lot of room but the chairs are so heavy. I am so not complaining It's just the little things that typical parents wouldn't think of. I am super thankful that we now have a wheelchair ramp going into the house, it has made life for our backs quite a lot better!! Next I am considering a teleporting machine!!! Any thoughts?? Now don't forget her AFO's or foot braces, and theratogs she wears with cable twisters to straighten her legs. Somedays it just seems like an awful lot of stuff to worry about and take care of.

Lastly, this week Mak had another appointment at McMaster with an eye specialist. She needs glasses!! Now to many this doesn't seem like a very big deal, and considering all we have been through you are quite right, but I was so upset by this news. It's funny the things that seem to throw you over the edge. I didn't cry when we filled out forms for a wheelchair, or walker, but eye glasses!!! It's not that it's a big deal, it's just one more thing! One more expense, one more thing to take care of, one more thing that Makayla NEEDS! I was sad to think that she has trouble seeing, as if trouble walking and talking isn't enough. And let's be honest here people how do you teach a monster to keep her glasses on her face and out of her mouth?? Makayla eats any and all inedible objects, it's what she lives for!! Ugh! It's simply one more thing! I realize Makayla will look sooooo cute, thats totally stating the obvious!! :)